Happy Halloween 🎃

I’ve had several DMT changes because I had some very scary allergic reactions while on my injections! On 9/20/18 my neurologist stopped my Extavia treatment and prescribed Rituximab! Naturally, I was very nervous once he went over all the possible side effects. One being PML, which just thinking about, gave me the heebie jeebies!

I had my first infusion on 10/17/18… I was miserable for 1 1/2 weeks. I had vision changes, strange pain in different spots, very heavy legs, dizziness, horrible anxiety, flushing, and crazy jaw pain! My Neurologist said he’ll check my disease course in response to the medicine, but I’m already treated for at least 6 months!

Although, I’m starting to feel better. I’m not 100% just yet. But, I have 3 sons and so the show must go on! It’s Halloween and to see them all dressed up and heading to school with the biggest smiles on their faces, is such a blessing! It means I’m here and I’m fighting! Living life with Multiple Sclerosis isn’t easy, but I’m never giving up! I have 3 ninjas (their costume choice this year) and a loving & loyal husband, depending on me to stay strong. Plus, I owe it to myself to make every day count!

I hope all of you are well and will enjoy your Halloween 👻

Sincerely, Crystal

Coffee

Is it possible for coffee to bring you peace?! Coffee is so much more than a cup of coffee, to me. It’s my quiet time! My relaxation. My thoughts. You know, how some people love to meditate… I meditate over a cup of coffee, morning or night, and both, when I feel like it! Since Multiple Sclerosis is so unpredictable, inner peace is my main priority. I fight this incurable disease, daily. When I was first diagnosed, my own definition of “myself”, was threatened. Everything critical to who I was had been altered. I’m no longer the mommy and wife who cleans the entire house alone, irons everyone’s clothes for the week, cooks dinner daily. However, I’m still the mom & wife that loves unconditionally and will always strive to be, the best version of me!

Thank you to Dream, Create, & Shine… for #MyCustomTumbler 😘🙌🏽☺️ it’s now my favorite way to drink my coffee! 🤗 #NotNewToThis #CoffeeLover #MyPeace #Disney #Starbucks #MS #ChronicIllness #KeepFighting

Happy New Year!

I’ve been super sick. Normally when I say that, it’s all about my MS & Lupus. Optic neuritis, fatigue, dizziness, migraines, severe muscle spasms, severe pain, painful hands, and last but not least, numbness & tingling are my most debilitating MS symptoms. This time, it’s because I caught a bug!

Even though I’m on injections every other night, it only reduces the frequency of my episodes, not stop them! I mostly rely on my faith & pray for no new lesions, each time I have an MRI. Now I’m slowly finding out how horrible a weakened immune system can be, and I’m changing my mind about being on Extavia!

Winter break with my family thus far, has been spent in pj’s, a messy bun, taking Prednisone and Azithromycin, and eating to live (which is detrimental since I’m a foodie, and I live to eat)!

In 2018, I’m aiming for more courage. I’ll always be humble, grateful and compassionate! So, a new year for me means more prayers going up for all those suffering, more time to hope for a cure for MS, more time to exude grace & strength, more reasons to practice patience and more time to love all those around me.

I say this sincerely, Happy New Year everyone!