The MS Struggle is Real

As a little girl, I went through trying times, filled with so much heartache and pain and I always found a way to be OK and to be grateful and thankful for life! I look at my husband & 3 sons and know they’re my greatest blessings. I have an amazing support system, I’m loved, and I feel it daily.

And yet, nothing could’ve ever prepared me for life with MS. It has shown me many ups and downs, crazy turns, beautiful triumphs and most of all my own strength & faith and the Grace of God!

I’m currently in an acute relapse of MS and it’s hard to believe I’ve been living with this since 2001! Through all the tremors, clumsiness, tingling/ numbness (times when I couldn’t even get out of bed because my legs just wouldn’t work), spasticity / weakness, cognitive impairment, dizziness, pain (excruciating pain), chronic fatigue and countless other symptoMS, I’m still here.

As my husband encourages me, appreciates me for being me and constantly pushes me to fight through this, I’ll be starting my daily steroids for awhile and pray a change in DMT won’t have to happen! He also knows I have days when strength just isn’t in me and I just need to “be”. On these days he lets me know everything will be okay and if ever it isn’t he’ll forever be, right by my side! He wipes my tears when I cry and just sits until I’m okay, again!

Stay strong warriors. Even though our stories are different, we’re the only ones who understand what it’s like to live with such an unpredictable and life changing thing! What’s the saying… You don’t get it, till you get it! Totally true for Multiple Sclerosis! 💪🧡

#MS #RituxanForMS #CureMS #MultipleSclerosis #HopeForACure #MSWarrior #StrongerThanMS #MyMSJourney #ThisIsMS #TheCampbell5 #MeMyselfNThem #MyStruggleIsMyStrength

Life With MS!

𝘚𝘰, 𝘸𝘦 𝘸𝘦𝘯𝘵 𝘵𝘰 𝘢 𝘤𝘰𝘯𝘤𝘦𝘳𝘵 𝘰𝘯 𝘖𝘤𝘵𝘰𝘣𝘦𝘳 19𝘵𝘩 𝘢𝘯𝘥 𝘐’𝘷𝘦 𝘣𝘦𝘦𝘯 𝘱𝘢𝘺𝘪𝘯𝘨 𝘧𝘰𝘳 𝘪𝘵 𝘦𝘷𝘦𝘳 𝘴𝘪𝘯𝘤𝘦. 𝘖𝘱𝘵𝘪𝘤 𝘯𝘦𝘶𝘳𝘪𝘵𝘪𝘴 𝘪𝘴 𝘷𝘦𝘳𝘺 𝘱𝘢𝘪𝘯𝘧𝘶𝘭. 𝘐’𝘮 𝘵𝘳𝘺𝘪𝘯𝘨 𝘵𝘰 𝘳𝘦𝘴𝘵 𝘢𝘯𝘥 𝘴𝘵𝘢𝘺 𝘴𝘵𝘳𝘦𝘴𝘴 𝘧𝘳𝘦𝘦 𝘵𝘰 𝘢𝘷𝘰𝘪𝘥 𝘸𝘰𝘳𝘴𝘦𝘯𝘪𝘯𝘨 𝘮𝘺 𝘴𝘺𝘮𝘱𝘵𝘰𝘮𝘴. 𝘉𝘶𝘵, 𝘶𝘯𝘧𝘰𝘳𝘵𝘶𝘯𝘢𝘵𝘦𝘭𝘺 𝘔𝘚 𝘩𝘢𝘴 𝘢 𝘮𝘪𝘯𝘥 𝘰𝘧 𝘪𝘵𝘴 𝘰𝘸𝘯! 𝘛𝘩𝘪𝘴 𝘲𝘶𝘰𝘵𝘦 𝘴𝘱𝘦𝘢𝘬𝘴 𝘵𝘰 𝘮𝘦 𝘣𝘦𝘤𝘢𝘶𝘴𝘦 𝘮𝘺 𝘷𝘪𝘴𝘪𝘰𝘯 𝘴𝘶𝘤𝘬𝘴 𝘳𝘪𝘨𝘩𝘵 𝘯𝘰𝘸 𝘣𝘶𝘵, 𝘵𝘩𝘦 𝘤𝘰𝘯𝘯𝘦𝘤𝘵𝘪𝘰𝘯 𝘐 𝘩𝘢𝘷𝘦 𝘸𝘪𝘵𝘩 𝘴𝘰 𝘮𝘢𝘯𝘺 𝘰𝘧 𝘮𝘺 #𝘔𝘚𝘍𝘢𝘮𝘪𝘭𝘺 𝘪𝘴 𝘢𝘮𝘢𝘻𝘪𝘯𝘨 𝘢𝘯𝘥 𝘳𝘦𝘢𝘴𝘴𝘶𝘳𝘪𝘯𝘨! 𝘞𝘪𝘴𝘩𝘪𝘯𝘨 𝘺𝘰𝘶 𝘢𝘭𝘭, 𝘵𝘩𝘦 𝘴𝘵𝘳𝘦𝘯𝘨𝘵𝘩 𝘵𝘰 𝘦𝘯𝘥𝘶𝘳𝘦 𝘸𝘩𝘢𝘵 𝘸𝘦 𝘮𝘶𝘴𝘵 𝘢𝘯𝘥 𝘵𝘩𝘦 𝘧𝘢𝘪𝘵𝘩 𝘵𝘰 𝘬𝘯𝘰𝘸… 𝘵𝘩𝘪𝘴 𝘵𝘰𝘰 𝘴𝘩𝘢𝘭𝘭 𝘱𝘢𝘴𝘴!

#MS #RituxanForMS #CureMS #MultipleSclerosis #HopeForACure #MSWarrior #StrongerThanMS #MyMSJourney #ThisIsMS #TheCampbell5 #MeMyselfNThem #MyStruggleIsMyStrength

Rituxan for MS!!

I did it. I had my Rituxan infusion today. For some, it’s no big deal. For me, my first infusion back on October 17 was very unpleasant, to say the least. And what came after was down right scary! Flushing, clavicle pain, excruciating jaw pain and clenching, shortness of breath, chest pain, each time I tried to sleep I woke up feeling like I was suffocating, and some other stuff which led me to the ER on the following day and Urgent Care the day after that! Through it all, I persevered. I did it because I know, for now, it’s what had to be done! I’m being strong because it’s necessary.

I’m choosing to be a model of grace & strength and although I have some very bad days… I’m not a sick person, I’m a person managing an illness and living with MS!

My Love was right there with me, holding my hand, and he never lets me go through life alone! My sons, are simply the best blessings in my life. Their empathy and compassion lets Big K & I know, we’re raising them right! Their concern for me is so appreciated and I love them very much 💙 Stay strong and be brave, warriors! 🧡

#MS #RituxanForMS #CureMS #MultipleSclerosis #HopeForACure #MSWarrior #StrongerThanMS #LupusToTho #AutoImmuneDiseases #ThisIsMS #TheCampbell5 #MeMySelfNThem

MS Awareness

#MSAwarenessEveryDay #MSFighter #MSWarrior #MadeStrong #Strength #Courage #ChronicIllness #Fatigue #FatigueSucks #MSLife #HopeForACure #MSFighter #StrongerThanMS #FaithHopeLove

Happy Halloween 🎃

I’ve had several DMT changes because I had some very scary allergic reactions while on my injections! On 9/20/18 my neurologist stopped my Extavia treatment and prescribed Rituximab! Naturally, I was very nervous once he went over all the possible side effects. One being PML, which just thinking about, gave me the heebie jeebies!

I had my first infusion on 10/17/18… I was miserable for 1 1/2 weeks. I had vision changes, strange pain in different spots, very heavy legs, dizziness, horrible anxiety, flushing, and crazy jaw pain! My Neurologist said he’ll check my disease course in response to the medicine, but I’m already treated for at least 6 months!

Although, I’m starting to feel better. I’m not 100% just yet. But, I have 3 sons and so the show must go on! It’s Halloween and to see them all dressed up and heading to school with the biggest smiles on their faces, is such a blessing! It means I’m here and I’m fighting! Living life with Multiple Sclerosis isn’t easy, but I’m never giving up! I have 3 ninjas (their costume choice this year) and a loving & loyal husband, depending on me to stay strong. Plus, I owe it to myself to make every day count!

I hope all of you are well and will enjoy your Halloween 👻

Sincerely, Crystal

Coffee

Is it possible for coffee to bring you peace?! Coffee is so much more than a cup of coffee, to me. It’s my quiet time! My relaxation. My thoughts. You know, how some people love to meditate… I meditate over a cup of coffee, morning or night, and both, when I feel like it! Since Multiple Sclerosis is so unpredictable, inner peace is my main priority. I fight this incurable disease, daily. When I was first diagnosed, my own definition of “myself”, was threatened. Everything critical to who I was had been altered. I’m no longer the mommy and wife who cleans the entire house alone, irons everyone’s clothes for the week, cooks dinner daily. However, I’m still the mom & wife that loves unconditionally and will always strive to be, the best version of me!

Thank you to Dream, Create, & Shine… for #MyCustomTumbler 😘🙌🏽☺️ it’s now my favorite way to drink my coffee! 🤗 #NotNewToThis #CoffeeLover #MyPeace #Disney #Starbucks #MS #ChronicIllness #KeepFighting

World MS Day 2K18

MS affects everyone differently. Some of my symptoms (since 2001) include, optic neuritis, fatigue, numbness and tingling, brain fog, muscle spasms and weakness, heat sensitivity, headaches, dizziness and so much pain! I have the most loving, and supportive family and the #MSFamily is so big that I’m never alone in this! Is it scary? Extremely so! And through everything, I’m able to smile and say “I’m stronger than MS”!

#WorldMSDay2018 #MSWarriors #FindACure #BringingUsCloser #AutoimmuneDisease #RRMS #InvisibleIllness #KeepFighting #MadeStrong #WeAreStrongerThanMS #AlwaysPrayingForACure🙏🏽 #FaithHopeLove

Bitter Sweet

I’ve been on Extavia (a shot every other day) for a little over a year now. I went to my Neurology Appointment 1/11. As always, I was extremely anxious … but this time also a little happy! My intentions were to ask all of my (written down) questions and stop my injections ! I thought just maybe, I needed to take a break. Well I know I did, mentally. It was draining and I’d gotten to the point where I would cringe every time my hubby reminded me, “it’s time for your shot”! Don’t get me wrong, it was also nice not to have the same symptoms I was experiencing daily! Especially after my right knee was buckling with every step, I was falling up & down the stairs in front of my sons (more times than I can count) and the tremors, numbness & tingling had taken over. However, my appointment definitely didn’t go as planned!

My amazing neurologist let me know:

Extavia was making my Lupus worse. Therefore, not helping my MS either!

While I got my wish, no more Extavia! I was also prescribed a new medication. This one will be taken every single day! So, as I was starting to cringe at the mere thought of taking my Extavia … as you can imagine, this news hit me like a ton of bricks!!

Although there’s been a drastic decrease in the number of MS episodes and symptoms I’ve been experiencing, the thought of more shots (every single day) gave me an uneasy feeling!

That was, until yesterday! A Nurse came to pay me a visit and start me on my Glatopa! Due to all of the possible side effects, I was apprehensive, to say the least! My shot went well, with only a red circle around the injection site and a minor pinching feeling.

Hope, Faith, and Love are what gets me through my days. I hope for so much. But especially, a cure for MS! I have faith in God, that he will continue to give me the strength I need, to get through my tough days! Love, the love my family has for me and I for them seriously keeps me going!

Have a beautiful and relaxing Sunday everyone!!

Happy New Year!

I’ve been super sick. Normally when I say that, it’s all about my MS & Lupus. Optic neuritis, fatigue, dizziness, migraines, severe muscle spasms, severe pain, painful hands, and last but not least, numbness & tingling are my most debilitating MS symptoms. This time, it’s because I caught a bug!

Even though I’m on injections every other night, it only reduces the frequency of my episodes, not stop them! I mostly rely on my faith & pray for no new lesions, each time I have an MRI. Now I’m slowly finding out how horrible a weakened immune system can be, and I’m changing my mind about being on Extavia!

Winter break with my family thus far, has been spent in pj’s, a messy bun, taking Prednisone and Azithromycin, and eating to live (which is detrimental since I’m a foodie, and I live to eat)!

In 2018, I’m aiming for more courage. I’ll always be humble, grateful and compassionate! So, a new year for me means more prayers going up for all those suffering, more time to hope for a cure for MS, more time to exude grace & strength, more reasons to practice patience and more time to love all those around me.

I say this sincerely, Happy New Year everyone!